Long Covid Support was formed by a group of people struggling to recover from Covid-19, who found each other online and have been facilitating international peer support and campaigning in the UK for recognition, rehabilitation and research into treatments since May 2020. 

Long Covid Support is a not-for-profit organisation, registered in the UK, but with affiliations in over 100 countries and territories. A group of 50 volunteers, all themselves with lived experience of Long Covid, are involved in our core work streams.

Our international Long Covid Support Group on Facebook is a warm and inclusive space for people experiencing the diverse, debilitating and alarming symptoms of Long Covid to share information, help each other through the bad days and rejoice in the good. We have several affiliate groups that focus on particular areas:

  • Covid-19 Research Involvement Group, where investigators can make connections with patients for involvement, participation and engagement in research into Covid-19.
  • Long Covid Kids, a parent-led campaign and support group.
  • Long Covid Scotland, an action group focused on the specific issues facing people living in Scotland.
  • Long Covid Wales, a patient-led support group focused on the specific issues facing people living in Wales.
  • Long Covid Physio, a global peer-support and advocacy group for Physiotherapists (Physical Therapists) and support workers living with Long Covid.
  • Long Covid Work, supporting people with Long Covid to stay in, return to, or leave work well.

For more information, please contact us at

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