Impact

Since May 2020 we have been working to support people with Long Covid, calling for Rehab, Research and Recognition (to which we later added Return to work). We are proud to be recognised for the impact of our work, examples of which are listed below.

 

Workers’ Experience of Long Covid

Joint research and report by the TUC and Long Covid Support.

Recognition for Long COVID Charities representing victims of COVID-19 as they are granted core participant status in module 3 of the UK COVID inquiry

Long Covid Support welcomes the inclusion of the Long Covid Groups (Long Covid Kids, Long Covid
Physio, Long Covid SOS, Long Covid Support) in Module 3 of the C19 Inquiry. It is imperative that the
post-acute sequelae of Covid19 are central to reflections on the pandemic response in order to
better prepare for future outbreaks.

Representing the Long Covid community as Core Participants in the U.K. Covid19 Inquiry module 2

Long Covid Support, alongside Long Covid Kids and Long Covid SOS are proud to jointly represent the Long Covid community as Core Participants in the U.K. Covid19 Inquiry module 2.

The first ever data on the effect of Covid reinfections on people with Long Covid


Long Covid Support and Long Covid Kids publish the first ever data on the effect of Covid reinfections on people with Long Covid

Our letter to the UK's new Prime Minister

 Read our letter to the UK's new Prime Minister, Liz Truss.

Long Covid Support at the HSJ Patient Safety Congress 2021

Here are four members of Long Covid Support (Claire Hastie, Monique Jackson, Dr Jo House and Dr Elaine Maxwell) exploring the most effective approach to protecting patients with Long Covid. Taken from HSJ's Patient Safety Congress 2021.

Long Covid Support partner with TUC

Long Covid Support partner with TUC to assess impact on employment and call for action

DWP - Shaping Future Support: the Health and Disability Green Paper consultation

Long Covid Support Employment Group have submitted a response to the Department for Work and Pensions, Shaping Future Support: the Health and Disability Green Paper consultation on 11th October 2021. You can read our response here: Long Covid Support Employment Group Response PDF

Long Covid Support letter to Sajid Javid - 8th July 2021

On July 8th, Long Covid Support wrote to Sajid Javid urging that, when evaluating policy, he takes account of the devastating and prolonged impact that Long Covid can have on people of all ages.

You can read the letter here: Long Covid Support letter to Sajid Javid 8 July 2021.pdf

 

Long Covid clinic survey - May analysis

Updated analysis of data from our ongoing survey into patient experience of seeking referral to Long Covid clinics in England. This presentation also includes feedback from our Facebook support group.