We need Long Covid clinics in every area

Louise Fisher, 53, from North Tyneside, UK

In 2019, I climbed to the top of Scar Fell Pyke, the highest peak in England with my husband and my teenage daughters. In 2020 we planned to climb Ben Nevis, the highest peak in the UK. Sadly, this plan never came to fruition as after contracting Covid 19 in March I am struggling with debilitating symptoms.

I was very ill in March with the classic Covid symptoms and called 111 as I was struggling for breath. I was told by the 111 nurser that I probably had pneumonia but there was nowhere to send me and no where to go and I would have to cope at home. 

Since March I have never been symptom free. At first it was shortness of breath, heart palpitations, muscle twitches, earache and muscle pains particularly behind my left shoulder blade and a whole host of other symptoms. 

At about 10 weeks after the initial infection whilst still struggling with these symptoms, I noticed that my knee and ankle were swollen and I started to have pain in my ankle, even though I was only going for short walks. The GP did various blood tests to rule out rheumatoid arthritis which were negative so I was diagnosed with Reactive Arthritis.  This pain, alongside other Long Covid symptoms, prevents me from walking or driving far.

My GP has never doubted that I had Covid and been supportive. However, they are under great pressure at the moment and can only fire fight my symptoms as they happen rather than look at what is happening holistically. I sometimes feel, as I did in March, that I am coping with this disease on my own

This is why we need Long Covid clinics in every area.

Help others find support

Share our information leaflet