What We Do
Since May 2020 we have been working to support people with Long Covid. We are proud to be recognised for the impact of our work.
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To cite this article:
Jokela-Pansini, M., Greenhough, B., Cousins, O., Dainow, J. (2023) Women’s Experiences of Long Covid, Project report https://www.longcovid.org/impact/stories/research-study-womens-experiences-of-long-covid
Long Covid Support was involved in a pilot workshop exploring body mapping as a creative research method to visualise the diverse experiences of women living with Long Covid in the UK. The workshop provided a unique space for women to represent the impacts of their condition. Beyond research, participants recognised the potential of body mapping to help individuals connect, share experiences and reflect on their illness, leading researchers to plan community training sessions in this impactful method. The insights gained will contribute to a deeper understanding of Long Covid, informing future research and support initiatives.
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Long Covid Support have submitted a response to the Department for Work and Pensions’ Work Capability Assessment (WCA): activities and descriptors consultation October 2023. Our response has been agreed and co-signed by the following Long Covid organisations and groups most of which have been campaigning since 2020 Long Covid Physio, Long Covid Kids, Long Covid SOS, Supporting Health Care Heroes UK, Long Covid Nurses and Midwives UK and ME Local Network.
For more information see link - Work Capability Assessment: activities and descriptors - GOV.UK (www.gov.uk)
You can read our response here: View Report
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Long Covid Support, together with Long Covid Scotland and North Thames NIHR Clinical Research co-hosted a 2 day webinar to discuss the current situation with regards to Long COVID clinics and research, where we need to get to and how we can achieve this together.
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Joint research and report by the TUC and Long Covid Support.
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Long Covid Support welcomes the inclusion of the Long Covid Groups (Long Covid Kids, Long Covid
Physio, Long Covid SOS, Long Covid Support) in Module 3 of the C19 Inquiry. It is imperative that the
post-acute sequelae of Covid19 are central to reflections on the pandemic response in order to
better prepare for future outbreaks.
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Long Covid Support, alongside Long Covid Kids and Long Covid SOS are proud to jointly represent the Long Covid community as Core Participants in the U.K. Covid19 Inquiry module 2.
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Long Covid Support and Long Covid Kids publish the first ever data on the effect of Covid reinfections on people with Long Covid
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Read our letter to the UK's new Prime Minister, Liz Truss.
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Here are four members of Long Covid Support (Claire Hastie, Monique Jackson, Dr Jo House and Dr Elaine Maxwell) exploring the most effective approach to protecting patients with Long Covid. Taken from HSJ's Patient Safety Congress 2021.
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Long Covid Support partner with TUC to assess impact on employment and call for action