What We Do

Since May 2020 we have been working to support people with Long Covid. We are proud to be recognised for the impact of our work.

DWP consultation - Work Capability Assessment: activities and descriptors

Long Covid Support have submitted a response to the Department for Work and Pensions’ Work Capability Assessment (WCA): activities and descriptors consultation October 2023. Our response has been agreed and co-signed by the following Long Covid organisations and groups most of which have been campaigning since 2020 Long Covid Physio, Long Covid Kids, Long Covid SOS, Supporting Health Care Heroes UK, Long Covid Nurses and Midwives UK and ME Local Network.

For more information see link - Work Capability Assessment: activities and descriptors - GOV.UK (www.gov.uk)

You can read our response here: View Report

Long Covid: What needs to happen next? July 2023

Long Covid Support, together with Long Covid Scotland and North Thames NIHR Clinical Research co-hosted a 2 day webinar to discuss the current situation with regards to Long COVID clinics and research, where we need to get to and how we can achieve this together.

View the Webinar Recordings

Workers’ Experience of Long Covid

Joint research and report by the TUC and Long Covid Support.

Recognition for Long COVID Charities representing victims of COVID-19 as they are granted core participant status in module 3 of the UK COVID inquiry

Long Covid Support welcomes the inclusion of the Long Covid Groups (Long Covid Kids, Long Covid
Physio, Long Covid SOS, Long Covid Support) in Module 3 of the C19 Inquiry. It is imperative that the
post-acute sequelae of Covid19 are central to reflections on the pandemic response in order to
better prepare for future outbreaks.

Representing the Long Covid community as Core Participants in the U.K. Covid19 Inquiry module 2

Long Covid Support, alongside Long Covid Kids and Long Covid SOS are proud to jointly represent the Long Covid community as Core Participants in the U.K. Covid19 Inquiry module 2.

The first ever data on the effect of Covid reinfections on people with Long Covid


Long Covid Support and Long Covid Kids publish the first ever data on the effect of Covid reinfections on people with Long Covid

Our letter to the UK's new Prime Minister

 Read our letter to the UK's new Prime Minister, Liz Truss.

Long Covid Support at the HSJ Patient Safety Congress 2021

Here are four members of Long Covid Support (Claire Hastie, Monique Jackson, Dr Jo House and Dr Elaine Maxwell) exploring the most effective approach to protecting patients with Long Covid. Taken from HSJ's Patient Safety Congress 2021.

Long Covid Support partner with TUC

Long Covid Support partner with TUC to assess impact on employment and call for action

DWP - Shaping Future Support: the Health and Disability Green Paper consultation

Long Covid Support Employment Group have submitted a response to the Department for Work and Pensions, Shaping Future Support: the Health and Disability Green Paper consultation on 11th October 2021. You can read our response here: Long Covid Support Employment Group Response PDF