We’d love to hear from you!

If you have Long Covid or are a direct carer of someone affected, join our private Long Covid Support Group. Otherwise, you may wish to join the conversation on our Long Covid Support Facebook Page.

Researchers and academics seeking to interact with people living with Long Covid are welcome to join our Covid-19 Research Involvement Group and/or to email

For media enquiries, please email: .

Find Us On

From the earliest days of the Covid-19 pandemic, patients from around the world came together on social media. As well as our friends from around the world, we work particularly closely with several UK-based organisations that focus on specific areas:

  • Covid-19 Research Involvement Group, where investigators can make connections with patients for involvement, participation and engagement in research into Covid-19.
  • Long Covid Kids, a parent-led charity focused on education, prevention, research and support.
  • Long Covid Scotland, an action group focused on the specific issues facing people living in Scotland.
  • Long Covid Wales, a patient-led campaign group focused on the specific issues facing people living in Wales.
  • Long Covid Physio, an international peer support, education and advocacy, patient-led association of Physiotherapists living with Long Covid and their allies.

We are members of Long Covid Europe and the Long Covid Alliance.

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