Long Covid Support is a peer support and advocacy group for people living with Long Covid.

Long Covid Support was formed by a group of people struggling to recover from Covid-19, who found each other online and have been facilitating international peer support and campaigning in the UK for recognition, rehabilitation and research into treatments since May 2020.

Our international Long Covid Support Group is a warm and inclusive space for people experiencing the diverse, debilitating and alarming symptoms of Long Covid to share information, help each other through the bad days and rejoice in the good. We have several sister and affiliate groups that focus on particular areas:

Long Covid Kids, a parent-led campaign and support group.

Long Covid Scotland, an action group focused on the specific issues facing people living in Scotland.

Long Covid Wales, a patient-led support group focused on the specific issues facing people living in Wales.

Covid-19 Research Involvement Group, where investigators can make connections with patients for involvement, participation and engagement in research into Covid-19.

Long Covid Physio, a global peer-support and advocacy group for Physiotherapists (Physical Therapists) and support workers living with Long Covid.


What is Long Covid?

From hair loss to Covid toes, Long Covid can affect any part of the body. People of all ages and previous levels of health and fitness are at risk of experiencing its life-changing effects - including children and adolescents. Anyone experiencing the symptoms of Long Covid should contact their GP or health care professional. See here Long-term effects of coronavirus and the Resources section for further advice.’

A study by Patient Led Research for Covid-19 found that after seven months of illness, 45% of respondents reported requiring a reduced work schedule compared to pre-illness and 22% were not working due to their health.

It is not yet understood why some people are affected severely while others are asymptomatic, but the UK’s Office of National Statistics estimates that 10% of people who test positive for Covid-19 experience symptoms for 12 weeks or longer.

Read more:

If you have confirmed or suspected Long Covid 
If you are a health professional 
If you are a researcher or academic
If you are an employer 
If you are a journalist