About us

Long Covid UK is a national charity set up by and for people living with or affected by Long Covid.  Our mission is to reduce the impact of Long Covid and improve the lives of all those affected by driving long-term, systemic change.

We do this by offering community support and working to ensure people with lived experience of Long Covid are meaningfully involved in the processes and decisions which affect their lives, from research to public policy. 

Logo for Long COVID UK featuring a blue background, a yellow virus icon, and white text.

Our History

Long Covid UK began in 2020 as a Facebook community, the "Long Covid Support Group", created by people who were not recovering as expected after acute COVID-19. It quickly grew into a space where people could share experiences, access information, and support one another.

As the community expanded, so did the need for advocacy, research, and improved care. Between 2020 and 2022, members of our support group continued to advocate tirelessly, influencing policymakers, achieving media attention and building relationships with researchers. In May 2022, the charity Long Covid Support was established to take this work forward. What was expected to be a temporary need has instead continued to grow, and in September 2026 the organisation became Long Covid UK, reflecting its role as a national charity representing people living with Long Covid across the UK.

Our work is rooted in our values

In line with our values, we work closely with a number of key partners. Find out more below.

collaboration
People engaged in a discussion at a wooden table, with focus on their hands and arms.

Peer-led

Warm, genuine,
compassionate, empathetic
and approachable

Two people sitting at a wooden table, engaged in a conversation or discussion. One person's hand is visible, gesturing while the other person listens.

Driven

Motivated, tenacious,
passionate and determined

People sitting at a wooden table, engaging in conversation, with close-up focus on their hands, in a dimly lit room.

Inclusive

Diverse, equity-oriented
and open-minded

People sitting at a table engaged in a conversation, with one person gesturing with their hands.

Collaborative

People-centered,
partner-oriented, open,
fair and holistic

Two men are sitting at a wooden table, engaged in conversation. One man is gesturing with his hand while talking, and his arm is resting on the table. The other man is listening with his head slightly tilted. The scene appears to be in a casual setting, with natural lighting.

Expert

Professional, lived-experience informed, evidence based
and knowledgeable

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Dependable

Trustworthy, safe
and respected

Find out more about our strategy, team and impact here

Our strategy
Our team
Our impact
Contact us