Our blog
Our blog is a space to share stories, information, and reflections on living with Long Covid and the resources out there. We also often share summary blogs of events we have attended, or of presentations which are shared with us.
We would love to hear from you if you’d like to write a blog for us – we can’t publish everything, but please get in contact on info@longcovid.org if you have an idea.
Find our latest blogs below.
Long Covid UK: A message from our chair
Long Covid Support is now Long Covid UK: same charity, same team, new look.
When the Heart Won’t Settle: Heart Symptoms in Long Covid
Nicola Williams is a cardiology nurse specialising in heart rhythm conditions and autonomic disorders. She works closely with patients experiencing Postural Tachycardia Syndrome (PoTS) and post-viral cardiovascular symptoms.
Write to your MP: help protect Long Covid services
Across England and Wales, specialist Long Covid services are being closed by local health systems at an alarming rate. These clinics provide vital support for people whose needs are often not met by standard healthcare pathways.
Long Covid Stories: sharing experiences from our community
People living with Long Covid have faced years lack of recognition and misunderstanding. Behind every statistic are real people, stories of loss, resilience, creativity and adaptation.
Introducing Long Covid Stories: Share your story
Matt Alton introduces our new project Long Covid Stories, opening a window onto his life with Long Covid in the hope that you will share your story too.
Overlapping Illness Alliance
We are proud to launch the Overlapping Illness Alliance, a coalition of charities working to improve recognition, care and support for those living with complex, overlapping conditions.
Launch Report: Long Covid Body Mapping Toolkit Webinar
The launch event introduced the new Body Mapping Toolkit, developed through a research project led by the University of Oxford in collaboration with Long Covid Support and people living with Long Covid.
Presentation by Dr. Jenny Ceolta-Smith
We are pleased to share the excellent presentation given by our advisor, Dr. Jenny Ceolta-Smith, at the Greater Manchester Coalition of Disabled People event on "Good Employment for Disabled People" held on October 8, 2024.
Why is the UK so sick? New ONS data estimates 2m with Long Covid
The new ONS data shows that in just 4 months, in England and Scotland, the number of people with Long Covid has increased by 9.9% to 2m. That's approximately 1 in every 32 people.
Long Covid: What needs to happen next?
Long Covid Support, together with Long Covid Scotland and North Thames NIHR Clinical Research co-hosted a 2 day webinar to discuss the current situation with regards to Long COVID clinics and research, where we need to get to and how we can achieve this together.
March 15 2023 is the first International Long Covid Awareness Day
Long Covid Action Project together with International Long Covid advocates have issued a demand letter to the Government - Help End the Long COVID Crisis (UK Letter) - Action Network
Long Covid Support at the HSJ Patient Safety Congress 2021
Here are four members of Long Covid Support (Claire Hastie, Monique Jackson, Dr Jo House and Dr Elaine Maxwell) exploring the most effective approach to protecting patients with Long Covid. Taken from HSJ's Patient Safety Congress 2021.
Long Covid Support partner with TUC
Our employment working group are working closely with TUC Equality to gather evidence of impact and work on possible solutions.