Get involved

Long Covid UK is a charity powered by volunteers, fundraisers, partners, and supporters. Many of us live with Long Covid ourselves, and that firsthand understanding shapes everything we do.

We're incredibly grateful to everyone who supports our work.

There are lots of ways to get involved and help us keep building momentum. Find out more below.

Volunteer
Fundraising
Events

Stay in touch

You can follow us on social media and sign up to our newsletter to stay connected.

If you have another idea you’d like to share with us, head to our Contact page to find the right team.

Get in touch

And remember, if you live with Long Covid or are a carer for someone who does, you can join our peer support groups – you're not alone.

Support Group
Carers
Men's Group

  • "The Long Covid Support Group has been lifeline for me and thousands of others. Even if it can’t always provide all the answers, its message is powerful: You are not alone."

    —Ruth Liptrot, Reporter 5 News and member of Long Covid Support Facebook Group member

  • "Long Covid Support were critical to the success of our international project with the WHO developing a Core Outcome Measurement Set, funded by the NIHR. From the position of someone leading a project urgently needed by both the research community and patients, I can't imagine a better example of dedicated and thoughtful patient involvement."

    —Dr. Tim Nicholson, Reader in Neuropsychiatry, King's College London

  • "What Long Covid Support have done is incredible. Early in the pandemic the group become a voice for those unable to access treatment. Partly as a result of their tireless work, there is now a much greater understanding of Long Covid. By being patient-led it has become the go-to organisation for insights and expertise."

    —Kait Borsay, Presenter, Times Radio

  • "The World Health Organization is honored to support the Long Covid Support Group and are committed to working side by side with you."

    —Dr Tedros Adhanom Ghebreyesus, Director General, World Health Organization

  • "It has been a pleasure to work with you again this year. Rachael [Evans] and I personally value the important difference you make to the PHOSP-COVID study work and more widely to Long Covid research, advocacy and policy. To do all this on top of having a long-term health condition is humbling. Thank you for all that you do."

    —Linzy Houchen-Wolloff, NIHR Leicester Biomedical Research Centre