Reducing the impact of Long Covid and improving the lives of all those affected.

Long Covid UK is a national charity set up by and for people living with or affected by Long Covid.  Our mission is to reduce the impact of Long Covid and improve the lives of all those affected by driving long-term, systemic change.

ABOUT US
symptoms
WORK AND FINANCES

  • You’re not alone

    Join our community of nearly 68,000 people affected by Long Covid.

    Join our community

  • Community-led and evidence-informed

    We work to empower the community of people impacted by Long Covid, embedding their voices and experiences in everything we do. 

    Our strategy

  • We want to live in a world where Long Covid has been addressed

    We want to see a future where Long Covid is fully recognised and understood; fewer people are affected; and everyone impacted by it receives the diagnosis, treatment, support and care they need to live as well as possible.

    Read our impact report

Find out more

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Information and support

INFORMATION

Our strategy

  • Bringing together a well-supported, diverse and connected community of people affected by Long Covid.

  • Developing a robust evidence base on Long Covid, rooted in the experiences and priorities of those living with the condition.

  • Campaigning for urgent policy change, better public services and greater public awareness alongside decision-makers, sector allies and our community.

  • "The Long Covid (UK) Support Group has been a lifeline for me and thousands of others. Even if it can’t always provide all the answers, its message is powerful: You are not alone."

    —Ruth Liptrot, Reporter 5 News and member of Long Covid Support Facebook Group member

  • "Long Covid UK were critical to the success of our international project with the WHO developing a Core Outcome Measurement Set, funded by the NIHR. From the position of someone leading a project urgently needed by both the research community and patients, I can't imagine a better example of dedicated and thoughtful patient involvement."

    —Dr. Tim Nicholson, Reader in Neuropsychiatry, King's College London

  • "What Long Covid UK have done is incredible. Early in the pandemic the group became a voice for those unable to access treatment. Partly as a result of their tireless work, there is now a much greater understanding of Long Covid. By being patient-led, it has become the go-to organisation for insights and expertise."

    —Kait Borsay, Presenter, Times Radio

  • "The World Health Organization is honored to support the Long Covid UK Support Group and are committed to working side by side with you."

    —Dr Tedros Adhanom Ghebreyesus, Director General, World Health Organization

  • "It has been a pleasure to work with you again this year. Rachael [Evans] and I personally value the important difference you make to the PHOSP-COVID study work and more widely to Long Covid research, advocacy and policy. To do all this on top of having a long-term health condition is humbling. Thank you for all that you do."

    —Linzy Houchen-Wolloff, NIHR Leicester Biomedical Research Centre