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LONDON, UK - Long Covid advocacy groups today responded to the UK Covid-19 Inquiry’s Module 3 report on healthcare systems, saying its findings provide important validation for the experiences of the millions of people living with Long Covid.
However, the groups warned that many of the systemic issues identified in the report from the early years of the pandemic remain unresolved six years on, leaving large numbers of patients without adequate care or support.
Advocacy groups are now calling on the Government and devolved administrations to urgently address the ongoing failures in care. They warn that Long Covid remains a significant public health challenge, affecting millions today with new cases emerging with each new wave.
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PRESS RELEASE
FOR IMMEDIATE RELEASE
LONG COVID PATIENT GROUPS CALL FOR URGENT REFORM AHEAD OF LANDMARK UK COVID-19 INQUIRY REPORT
Long Covid Kids, Long Covid SOS, Long Covid Physio and Long Covid Support today issue their core demands ahead of the release of the UK Covid-19 Inquiry’s Module 3 report. Due for release on Thursday (19 March), Module 3 of the Inquiry explored the impact of the pandemic on healthcare systems across the four nations of the UK.
The groups, which together represent hundreds of thousands of Long Covid sufferers and their families, including many healthcare workers severely affected, say that the Module 3 report must make ambitious recommendations to address the ongoing and systemic failures impacting at least 2 million adults and children with Long Covid across the UK.
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Nicola Williams, Cardiology Nurse
Nicola Williams is a cardiology nurse specialising in heart rhythm conditions and autonomic disorders. She works closely with patients experiencing Postural Tachycardia Syndrome (PoTS) and post-viral cardiovascular symptoms. We are sharing this blog as part of Long Covid Awareness Day, whose theme this year is Every Heartbeat Counts.
Over the past few years, many people recovering from COVID-19 have found that the illness does not always end when the infection clears. For some, symptoms have continued for months or even years. This condition, commonly known as Long Covid, can affect multiple parts of the body. For many people, the heart and circulation are part of that story.
As a cardiology nurse specialising in heart rhythm conditions, I have seen first-hand how COVID-19 has changed the landscape of heart health. Increasingly, patie
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People living with Long Covid have faced years lack of recognition and misunderstanding. Behind every statistic are real people, stories of loss, resilience, creativity and adaptation.
Long Covid Stories is a new project from Long Covid Support that aims to share some of these experiences with a wider audience.
Through a series of written pieces, the project will highlight the many different realities of living with Long Covid. These stories will explore the personal, social and practical impacts of the condition, and the ways people continue to shape their lives around it.
The project is led by Matt Alton, who is interviewing members of our community and writing up their stories for our website and newsletter.
We’re honoured to share Naomi’s story. Written by Matt, it reflects on illness, care and the meaning of interdependence, showing both the losses Long Covid can bring and the creativity and connection that can grow alongside it.
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Across England and Wales, specialist Long Covid services are being closed by local health systems at an alarming rate. These clinics provide vital support for people whose needs are often not met by standard healthcare pathways.
We’re asking our community and supporters to write to their MPs and urge them to take action to protect local services.
Your MP represents you in Parliament. Hearing directly from constituents can make a real difference in raising awareness and pushing decision-makers to act.
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Matt Alton introduces our new project Long Covid Stories, opening a window onto his life with Long Covid in the hope that you will share your story too. Matt will be conducting interviews and writing up stories from our community to share through our newsletter and website. His poetry and social research has been published widely and he posts on Instagram: @mattaltonpoet. If you’d like to share your experience with the LCS community and beyond we’d love to hear from you, initially by filling in the Google Form linked here. We only have capacity to tell a handful of stories, so we’ll select to represent a variety of experiences: mild to severe illness; a diverse range of ages, genders, sexualities and ethnicities; people from all around the UK. We’ll conduct an interview in a format accessible to the participant and write up an aspect of their story for the LCS newsletter and blog.
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UK Covid Inquiry – Module 9 | 26 November 2025
Long Covid SOS and Long Covid Support are demanding answers from former Secretary of State for Work and Pensions, Baroness Thérèse Coffey DBE PC, as she appears before the UK Covid Inquiry (Module 9) on Wednesday 26 November 2025.
The Long Covid groups will challenge the Department for Work and Pensions (DWP) over the catastrophic lack of financial and employment support for the millions of people whose lives and careers have been devastated by Long COVID.
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“TOO LITTLE, TOO LATE”, VALIDATION FOR PEOPLE WITH LONG COVID
Inquiry exposes government failures behind the Long Covid crisis
Long Covid Groups welcome the Inquiry’s recognition of millions still suffering, and call for urgent national action.
London, 20 November 2025. Long Covid Groups (comprising the UK charities Long Covid Kids, Long Covid SOS, Long Covid Support and UK organisation Long Covid Physio) welcomes the publication of the UK Covid-19 Inquiry’s second report and its recognition of the devastating, long-term impact of Long Covid.
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We are proud to launch the Overlapping Illness Alliance, a coalition of charities working to improve recognition, care and support for those living with complex, overlapping conditions. Check out our website: https://www.overlappingillnessalliance.org.uk/
The OIA are hosting a drop-in session at the Houses of Parliament on Tuesday 25 November to inform MPs about these illnesses, and what they can do to support. Ask your MP to attend using our simple form: https://dub.sh/OIAdropin
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Date of Webinar: 27 June 2025
Organised by: Long Covid Support and University of Oxford
Presenters: Dr. Maaret Jokela-Pansini, Professor Beth Greenhough, Oonagh Cousins
Watch the full webinar recording here: https://www.youtube.com/watch?v=oduHaNiiXmI&t=1s
The launch event introduced the new Body Mapping Toolkit, developed through a research project led by the University of Oxford in collaboration with Long Covid Support and people living with Long Covid. The toolkit is designed to support communication, peer connection, and personal reflection. It provides a structured introduction to body mapping and can be used either individually or in peer-support workshops.
