Research we’ve helped shape

Since 2020, our members have been working alongside international scientists through patient and public involvement (PPI) to help shape how research is designed, delivered, and shared.

Including lived experience in research helps us find treatments sooner and ensures research reflects what truly matters to patients, their families, and loved ones.

Here is a list of research papers our members have co-authored. If you click on the title, the paper will open in a new tab.

Take a look at further research papers in our Research Library. If you are conducting research and would like input or support from our Research Involvement Consultancy, find out more here.