Post-exertional malaise (PEM)

Many people with Long Covid experience post-exertional malaise (PEM). This is when symptoms get worse or new symptoms appear, after physical, cognitive, emotional or social effort. Some people refer to this as a "crash" or "flare".

PEM has three key features:

  • Delayed: symptoms often show up hours or days later

  • Out of proportion: the reaction can be much bigger than the activity

  • Slow recovery: it can take a long time to feel back to baseline

“Exertion” is anything that uses energy, including:

  • Physical: walking, showering, cooking, cleaning

  • Cognitive: concentrating, reading, decision-making

  • Emotional: stress, anxiety, difficult conversations, excitement

  • Social: spending time with others, phone calls, social media

What “delayed” and “out of proportion” can look like

  • You might feel okay while you’re doing something, then feel much worse 24–48 hours later.

  • For someone without PEM, a short walk might cause normal tiredness. With PEM, the same walk could lead to a major setback and days of recovery.

What PEM feels like

PEM can involve a range of symptoms, such as:

  • Sudden drop in physical ability (heavy body, weakness)

  • Brain fog (slower thinking, poor concentration)

  • Pain (aches, headaches, flu-like feelings)

  • Unrefreshing sleep (sleeping but not feeling restored)

  • Dizziness or heart symptoms when upright (palpitations, feeling faint)

  • Sensory overload (light and noise feel too much)

  • Digestive symptoms (nausea, appetite changes)

  • Temperature changes (hot flushes, chills, struggling to warm up)

Not everyone who experiences PEM experiences all of these symptoms, and PEM can look different from person to person.

What can help

RESOURCES

ME Action: PEM and pacing guides (adults, children/parents, professionals), Long Covid Physio: pacing and PESE resources, Long Covid Support: pacing education sessions (Ben Wicken), Physios for ME: heart-rate monitoring videos and pacing tools, NICE guideline NG206 (ME/CFS): physical activity recommendations and GET, Visible: “PEM: Why ‘good days’ may be costing you tomorrow”

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Dysautonomia and POTS