Mental health

For many people, the impact of Long Covid on mental health is profound. Persistent symptoms, uncertainty, isolation, and changes to work, finances, relationships and identity understandably have a major impact on people’s emotional wellbeing. Some people also experience anxiety or low mood as part of the illness itself.

You do not have to face this alone

Many people find it helps to speak to others who understand. Our online peer support community offers a space to share experiences, feel less isolated, and find practical support from others living with Long Covid. We also run in-person peer support groups in some areas, for people who would benefit from face-to-face connection.

What it can feel like

  • anxiety, panic, feeling “on edge”, or a sense of dread

  • low mood, hopelessness, tearfulness, irritability

  • grief and loss (for health, independence, identity, work, plans)

  • feeling overwhelmed, emotionally “flat”, or unable to cope

  • loss of confidence and withdrawal from social life

  • frustration, anger, or feeling dismissed or disbelieved

  • symptoms worsening during flares, after exertion, or when sleep is poor

It can also be helpful to know that some anxiety-like sensations (such as racing heart, breathlessness, dizziness, shakiness) can overlap with physical symptoms linked to PoTS/dysautonomia, breathing changes, or MCAS.

What can help day to day

There is no single approach that works for everyone.

RESOURCES

Finding immediate support and helplines
HelpGuide.org: international directory of mental health helplines, Helplines Partnership: “Find a Helpline” hub (UK directory of helplines). 

Long Covid and mental health resources
Olivia Belknap: resources on Covid and mental health impacts, including materials to support conversations with clinicians, Covid Conscious Therapists: directory of therapists who state they understand ongoing Covid-related stress and precautions. 

General mental health support (UK)
Samaritans (24/7): 116 123, Mind: mental health information and support, Every Mind Matters: practical tips and activities (NHS), Childline (under 18s): 0800 1111, National Bereavement Alliance: directory of bereavement support organisations, Cruse Bereavement Support: free bereavement helpline 0808 808 1677 

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